Barbara recently welcomed a Worsley resident to Westminster to discuss funding for research into a cure for Duchenne Muscular Dystrophy.
Duchenne Muscular Dystrophy, also known as DMD, is a severe and progressive muscle wasting disease affecting boys and young men. It is the second most common genetic disease after cystic fibrosis, affecting 1 in every 3000 boys, and it reduces life-expectancy to around 20.
Barbara’s constituent Lynda Price, whose 3 year-old grandson suffers from the condition, visited Parliament to campaign for more funding for research into a cure.
Last November Barbara ran five miles in the Salford Womens 5 mile race to raise money for Parent Project UK (PPUK) – the only charity that exclusively supports research into a cure for the disease.
“DMD is a heartbreaking disease for the families of the young boys, who begin to see their muscles wasting away at an early age. However, there is now more hope for those who suffer from DMD through new treatments that can slow the disease.
"More funding is needed to develop these treatments. PPUK provide grants for a series of projects every year. I am encouraged that the Government has invested £4 million into gene therapy research, and an additional £1.6 million to the Muscular Dystrophy Campaign at Imperial College London. This is real progress.
"I hope that we can raise more money through for grants through PPUK and that more Government funding can be put into research, so that the lives of the boys who live with this disease are made easier.”
(If you would like to make a donation to Parent Project UK you can send a cheque to PPUK, Epicentre, 41 West Street, London, E11 4LJ, or call 0208 556 9955. Alternatively, you can visit their website at www.ppuk.org).
Barbara meeting with Lynda Price in Westminster